Below are examples of difficult questions that may come up and examples of how you may want to respond:
- “When will my brother/sister come home?”
- If you don’t know, answer by saying “Your brother has to stay in the hospital until the doctors decide it is okay for her to come home. The hospital is doing everything they can in the hopes she can come home as soon as possible. Do you think we should bring him something that will make her feel more at home?”
- “Is my brother/sister going to get better?”
- “The doctors and nurses are doing their very best to make sure she is getting the care and the medicine she needs.”
- “Is my brother/sister going to die?”
- Death is a very sensitive and difficult topic for a person of any age, but especially for children. If you have a child with a life limiting disease, use direct and simple language when explaining this to a child. Avoid using phrases such as “they are going to sleep.” Instead share your family's belief about what happens after death by stating “when the body stops working.”
Our child life specialists can guide your children in a memory making project such as making a scrapbook of pictures of their family, writing a letter to their sibling or making handprints. A child life specialist can also be there when you are ready to have these conversations and can help you bring your family together.